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SPECIAL TOPIC DATA RESOURCES


Get point and click access to data findings and related resources and reports from national data on (1) children with autism spectrum disorder and (2) complementary and alternative medicine use in children. Get focused data and resources related to (3) advancing high quality family-centered medical homes for youth and children, (4) perinatal health indicators, (5) pediatric quality and systems improvement data, and (6) other National Health Interview Survey data findings for children and families.


This webpage includes data resources for national surveys for which there is more recent data and that the CAHMI has not been able to update but that are still relevant. Contact info@cahmi.org for questions or updates.

 

 


Autism Spectrum Disorder Portal (2009-2011)

Easy access to national data findings form the Survey of Pathways of Diagnosis and Services (Pathways)

Explore the nationally representative Pathways data about the health, well-being, and experiences of children with autism spectrum disorder (ASD) and their families. The Pathways data was collected in 2011 as a follow up to the 2009-2010 National Survey of Children With Special Health Care Needs.


This project was supported by Autism Speaks.



Complementary and Alternative Medicine Use in Children (2012)

The National Health Interview Survey (NHIS) – Child Complementary and Alternative Medicine (CAM) Supplement (2012)


The 2012 CAM supplement collected information about non-conventional health services, products, and practices commonly used in the United States among a randomly selected sample of children 4-17 years. Information collected included CAM modalities, insurance coverage, out-of-pocket costs for visits to CAM providers, classes or trainings, reasons for and benefits of CAM use, conventional medical care use for children who used CAM, disclosure of CAM use to health care providers, and sources of information about CAM.


This project was supported by National Center for Complementary and Integrative Health (formerly NCCAM).



Medical Home Portal (2005-2010) - Coming soon!

Explore key data on how children in each state experience receiving care within a medical home. The medical home measure uses standardized national survey data to assess whether children and youth have a personal doctor or nurse, have a usual source of care, receive needed referrals, receive help coordinating care across multiple providers, and receive care that is family-centered and culturally sensitive.


  •   Access state-specific data
  •   Compare medical home prevalence across states
  •   Learn about the medical home concept
  •   Find examples of medical home data in action
  •   New opportunities for medical home though health care reform

This project was funded by the CAHMI and the National Center for Medical Home Implementation (a cooperative agreement between the Maternal and Child Health Bureau and the American Academy of Pediatrics).



Perinatal Health and Medicaid Portal (2011) - Coming soon!

Research tells us early elective deliveries carry significant increased maternal and fetal risks. To better understand the extent of early elective deliveries within the Medicaid population and to create a baseline for assessing the impact of policy change, Medicaid delivery data from 22 states have been aggregated in this one-of-a-kind data portal.


  •   Learn more about perinatal data methodology
  •   Access perinatal data tables and charts
  •   Access more resources about perinatal data
  •   Learn more about the Medicaid Medical Directors Perinatal Care Project

This project was supported by the Agency for Healthcare Research and Quality, the Centers for Medicare and Medicaid Services, and the Health Resources and Services Administration, including the Maternal and Child Health Bureau. Medicaid Medical Directors also worked collaboratively with the National Association of Medicaid Directors, the Association of State and Territorial Health Officials, and the National Association of Maternal and Child Health Programs, the Secretary’s Advisory Committee on Infant Mortality, and the Child and Adolescent Health Measurement Initiative.



Pediatric Quality and Systems Improvement Portal (2001-2012) - Coming soon!

Access pediatric quality and system performance data and resources that aim to align national efforts to improve the current health care system so that quality care is a national priority and accessible to all children, adolescents, and families.


  •   Browse Systems Improvement data
  •   Find examples of Systems Improvement data in action
  •   Systems Improvement Resources


Healthy People 2030 Portal - Coming soon!

The United States Department of Health and Human Services establishes national health and health-related goals once per decade. The goals outlined in this report, most recently in Healthy People 2030, establish a baseline for monitoring the health of the nation and provide an aspirational roadmap for improving … The CAHMI maps important child health measures from Healthy People 2030 to data from the National Survey of Children’s Health…see results here.


  •   Browse Systems Improvement data
  •   Find examples of Systems Improvement data in action
  •   Systems Improvement Resources

 


 


HIGHLIGHTS:

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Experience Matters: A View into the Health and Wellbeing of Children with Autism Spectrum Disorder (2016)

Developed in partnership between the CAHMI and Autism Speaks, the Experience Matters chartbook represents one of the first national portraits of children with autism spectrum disorder in the U.S.: how they receive their diagnoses, how their daily lives are impacted, and how their families are doing.

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Mind-body therapies in children and youth (2016)

A growing body of evidence supports the effectiveness and safety of mind-body therapies in pediatrics. This clinical report outlines popular mind-body therapies for children and youth and examines the best-available evidence for a variety of mind-body therapies and practices, including biofeedback, clinical hypnosis, guided imagery, meditation, and yoga.

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Taking Stock of the CSHCN Screener: A Review of Common Questions and Current Reflections (2015)

Since 2000, the Children with Special Health Care Needs (CSHCN) Screener has been widely used nationally, by states, and locally as a standardized and brief survey-based method to identify populations of children who experience chronic physical, mental, behavioral, or other conditions and who also require types and amounts of health and related services beyond those routinely used by children.